Deshae Lott

determined sojourner

Heath care: links to individuals with trach tubes

        Site of the late best-selling author Mattie J.T. Stepanek whose poetry I find illuminating.
  • Christopher Reeve Paralysis Foundation
        Site for the late actor's foundation for research into curing paralysis.
  • Professor Stephen W. Hawking's Web Pages
        Site for the award-winning academician, who has lived to a more advanced age than perhaps anybody with a relatively early onset of a neuromuscular disease -- almost 40 years now after diagnosis.
  • Anna
        Has muscular dystrophy and has survived on a vent for many years, giving birth to a daughter since going on ventilation. She tests computer applications and is exceptionally multilingual although the site is in Japanese.

  • Timothy A. Carey
        Tim has Duchenne Muscular Dystrophy and is ventilator dependent.  He runs DisabilityVoice, which tries to inform people with and without disabilities about people with disabilities and also advocates for people with disabilities.

Health care issues and information:






Links to individuals with trach tubes

VENT-L listserv